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Pediatric Palliative Care and Hospice: Communication and Self-Care

presented by Joan Chrastek, RN, CHPN, DNP, FPCN

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Disclosure Statement:

Financial: Joan Chrastek receives compensation from MedBridge for this course. There is no financial interest beyond the production of this course.

Non-Financial: Joan Chrastek has no competing nonfinancial interests or relationships with regard to the content presented in this course.

Satisfactory completion requirements: All disciplines must complete learning assessments to be awarded credit, no minimum score required unless otherwise specified within the course.

MedBridge is committed to accessibility for all of our subscribers. If you are in need of a disability-related accommodation, please contact [email protected]. We will process requests for reasonable accommodation and will provide reasonable accommodations where appropriate, in a prompt and efficient manner.

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Video Runtime: 40 Minutes; Learning Assessment Time: 23 Minutes

Good, compassionate communication is an essential skill for nurses to have as they care for children who need hospice or palliative care and their families. This topic can be challenging to navigate, especially when talking about death with children and their families. This course provides an overview of communication during pediatric hospice and palliative care. Jody brings in bereaved parents to talk about what was helpful to them, as well as what was hurtful, to help health care providers learn to communicate more effectively and compassionately. This course also provides information on self-care. Individuals can only be compassionate to others if they are compassionate to themselves. The course provides a simple self-care plan that is a useful tool for health care providers.

Meet Your Instructor

Joan Chrastek, RN, CHPN, DNP, FPCN

Joan "Jody" Chrastek was born and brought up in India and trained as a nurse in Scotland. She has worked as a midwife and hospice nurse in the UK, India, and the USA with adults and children. She has worked in hospice and palliative care for more than 35 years in both inpatient and community…

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Chapters & Learning Objectives

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1. Talking With Children About Death

Children can ask difficult questions like, “Am I dying?” This chapter introduces ways to communicate honestly and compassionately. Jody provides practical ideas and a useful handout that will help nurses develop their own strategies for talking to children about death.

2. Communicating With the Family About the Child’s Death

Providing pediatric hospice and palliative care means providing support for the whole family, including the siblings. This chapter introduces strategies to discuss death with siblings and provides suggestions of how to engage them in discussion to be better able to support them.

3. "But What About Me?": Self-Care for the Clinician

Unfortunately, the term “self-care” is often overused, making nurses’ eyes glaze over, yet providing hospice and palliative care to children can take its toll. It’s important to make care plans for yourself, not just patients. In this chapter, Jody teaches you how to make one for yourself and includes ways to have fun.

More Courses in this Series

Introduction to Pediatric Hospice and Palliative Care

Presented by Joan Chrastek, RN, CHPN, DNP, FPCN

Introduction to Pediatric Hospice and Palliative Care

Subscribe now, and access clinical education and patient education—anytime, anywhere—with video instruction from recognized industry experts.
Video Runtime: 40 Minutes; Learning Assessment Time: 33 Minutes

Pediatric hospice and palliative care have many similarities and differences to their adult counterparts. This fast-paced course gives an introductory overview of this topic, encouraging clinicians to share their expertise across the life span by building on previous knowledge. Teams are an essential part of pediatric hospice and palliative care. This course goes over how teams interact with children and their families for a better quality of life. Personal interviews with three mothers whose children used hospice and palliative care help bring the concepts to fruition. Pediatric hospice and palliative care is very important to children and their families, and this course helps emphasize this.

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Pediatric Palliative Care and Hospice: Symptom Management

Presented by Joan Chrastek, RN, CHPN, DNP, FPCN

Pediatric Palliative Care and Hospice: Symptom Management

Subscribe now, and access clinical education and patient education—anytime, anywhere—with video instruction from recognized industry experts.
Video Runtime: 46 Minutes; Learning Assessment Time: 34 Minutes

This course provides an overview of the most common symptoms that children can experience when they need palliative or hospice care. This course discusses symptoms that appear commonly across the life span and goes over the differences that symptoms may present in children versus in adults. This course covers the importance of accurate ongoing assessment of symptoms as well as the use of both pharmacological and nonpharmacological interventions in the treatment of these symptoms. Cultural considerations and partnering with family caregivers is an important aspect. A mother will share her views and experiences to help the learner understand symptom management from a parent's point of view. Distressing symptoms drastically reduce the quality of a child's life and the lives of family members, so it is essential that nurses who care for children with palliative and hospice needs are aware of these common symptoms and interventions.

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Pediatric Palliative Care and Hospice: Grief and Bereavement

Presented by Joan Chrastek, RN, CHPN, DNP, FPCN

Pediatric Palliative Care and Hospice: Grief and Bereavement

Subscribe now, and access clinical education and patient education—anytime, anywhere—with video instruction from recognized industry experts.
Video Runtime: 40 Minutes; Learning Assessment Time: 31 Minutes

This course gives an overview of common types of grief and how they present. Jody provides guidance on how to talk to children and parents about the dying process and death. Many young adult parents have never experienced the death of a loved one. This course provides helpful guidance to the clinician providing care and explains how to plan in advance and find resources to assist the family. Jody speaks with mothers about their grieving process. This course also provides a reminder to the clinician that in palliative care we often cannot fix things, but we can provide comfort by offering appropriate individualized support and compassion.

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Pediatric Palliative Care and Hospice: Final Weeks, Days, and Hours

Presented by Joan Chrastek, RN, CHPN, DNP, FPCN

Pediatric Palliative Care and Hospice: Final Weeks, Days, and Hours

Subscribe now, and access clinical education and patient education—anytime, anywhere—with video instruction from recognized industry experts.
Video Runtime: 46 Minutes; Learning Assessment Time: 36 Minutes

Caring for children at the end of life can be challenging in many ways. Yet with support, knowledge, and compassion, it can be fulfilling and meaningful. This course provides a brief overview of caring for children at the end of life and the best ways to support their families. It is an introduction to the dying process, medications, and how to be there for parents and siblings. This course is written for an audience that does not have much experience in taking care of children at the end of life and their families. It is case based and addresses the needs of the child, family, and the nurse.

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Pediatric Palliative Care and Hospice: Pain Assessment and Intervention

Presented by Joan Chrastek, RN, CHPN, DNP, FPCN

Pediatric Palliative Care and Hospice: Pain Assessment and Intervention

Subscribe now, and access clinical education and patient education—anytime, anywhere—with video instruction from recognized industry experts.
Video Runtime: 43 Minutes; Learning Assessment Time: 33 Minutes

Good pain management for children who have hospice and palliative care needs can be complex and challenging. However, some simple steps can make achieving excellent pain control for many children easier. Using case studies, this course builds and discusses examples of interventions that can be helpful. This course is designed to be an introduction to assessment, nonpharmacological interventions, and pharmacological interventions. Some of the concepts are similar to concepts in the care of adults; others are different. This course also brings in the voice of a parent to help the learner better understand the family point of view.

View full course details

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