There are approximately 4 million stroke family caregivers in the United States. Research indicates that these caregivers are often underprepared to assume the caregiving role post-discharge. In this course, Dr. Barbara Lutz discusses the concerns of stroke caregivers and gaps in preparation that may result in poor outcomes for stroke survivors and their family caregivers. She discusses strategies for addressing these gaps and evidence-based tailored caregiver interventions. This course also includes information about community-based and web-based resources specifically designed for caregivers.
Dr. Barbara Lutz is the McNeill Distinguished Professor at the University of North Carolina-Wilmington School of Nursing. Her 30+ year career as a rehabilitation and public health nurse spans practice, research, education, and service. Her research focuses on understanding the needs and experiences of patients with stroke and other chronic illnesses and their family caregivers as they move through the continuum of care, from acute care to home. The goal of her work is to engage patients and their family caregivers in developing person and family-centered, community-based interventions for people with stroke and other chronic illnesses. She is a Co-Investigator on a PCORI-funded research study to test a person-centered, community-based Emergency Department (ED) to Home transitional care intervention developed in partnership with a research team that includes former patients, family caregivers, social workers, ED physicians, staff of 2 local Area Agencies on Aging, and health services researchers. Dr. Lutz is a Fellow in the American Academy of Nursing, American Heart Association (AHA), and National Academies of Practice. She is a board member of the Association of Rehabilitation Nurses and is a co-author on a position paper on the transitional care needs for patients needing rehabilitation services and on AHA scientific statements on palliative care in stroke, risk adjustment for stroke, and best evidence on stroke caregiver interventions. She has also served as a member of the ANA Care Coordination Quality Measures Steering Committee and as a rehabilitation expert on the Joint Commission Technical Advisory Panel for Comprehensive Stroke Center Certification.
In the first chapter of this course, Dr. Barbara Lutz provides information about the needs of stroke caregivers. She describes strategies for assessing stroke caregiver needs and gaps in preparedness. Participants will learn strategies for prioritizing gaps in caregiver preparedness.
Chapter 2 compares and contrasts evidence-based interventions for stroke caregivers. Dr. Barbara Lutz discusses strategies for addressing gaps and preparing caregiver. Participants will learn to tailor strategies for caregiver interventions.
Chapter 3 provides an overview of long-term caregiving strategies and available resources. Dr. Barbara Lutz describes long-term strategies for sustaining the caregiver role and provides an overview of resources for stroke caregivers. This chapter also provides examples of available programs.
Dr. Barbara Lutz reviews national policies related to caregivers and the recommendations that they provide. She gives examples of funding sources available to caregivers and describes how to implement interventions to meet caregiver needs.