presented by Barbara Lutz
This course provides students with an overview of the palliative care needs of post-stroke patients and their family members, and provides recommendations for nurses caring for stroke patients and their families across the care continuum. The course starts with an overview of palliative care including definitions and key elements. Current research on and tools for assessing palliative care needs in stroke patients and their families are discussed. Suggestions for family-centered approaches to stroke palliative care and recommendations for nurses who are providing care for stroke patients and their family members in multiple settings are included.
Dr. Barbara Lutz is the McNeill Distinguished Professor at the University of North Carolina-Wilmington School of Nursing. Her 30+ year career as a rehabilitation and public health nurse spans practice, research, education, and service. Her research focuses on understanding the needs and experiences of patients with stroke and other chronic illnesses and their family caregivers as they move through the continuum of care, from acute care to home. The goal of her work is to engage patients and their family caregivers in developing person and family-centered, community-based interventions for people with stroke and other chronic illnesses. She is a Co-Investigator on a PCORI-funded research study to test a person-centered, community-based Emergency Department (ED) to Home transitional care intervention developed in partnership with a research team that includes former patients, family caregivers, social workers, ED physicians, staff of two local Area Agencies on Aging, and health services researchers. Dr. Lutz is a Fellow in the American Academy of Nursing, American Heart Association (AHA), and National Academies of Practice. She is a board member of the Association of Rehabilitation Nurses and is a co-author on a position paper on the transitional care needs for patients needing rehabilitation services and on AHA scientific statements on palliative care in stroke, risk adjustment for stroke, and best evidence on stroke caregiver interventions. She has also served as a member of the ANA Care Coordination Quality Measures Steering Committee and as a rehabilitation expert on the Joint Commission Technical Advisory Panel for Comprehensive Stroke Center Certification.
Stroke is the fifth leading cause of death in the U.S., and the risk of death in the first five years post-stroke is approximately 50%, with the highest risk in the first year. In order to provide family-centered care, knowledge about palliative care approaches are critical for nurses who provide care to stroke patients and their family members. This chapter includes definitions and key principles of palliative care and provides the rationale for why implementing palliative care approaches are critical for many stroke patients and their families.
In order to provide evidence-based palliative care, nurses need to understand the current state of the science of palliative care research, and its application when caring for stroke patients. This chapter provides an overview of the current research in palliative care and stroke, identifies gaps in research, and includes suggestions for future studies.
The final chapter provides recommendations for nurses who provide care for stroke patients and their families across the care continuum. Tools for assessing palliative care needs will be discussed. Palliative care resources, including clinical guidelines that nurses can use when working with stroke patients, will be shared.